It may have been suspected, or maybe broadsided you out of the blue. Mom has just received the official diagnosis for a progressive disease that is going to make independent life difficult. While there are a number of unknowns, one thing is for sure: she’s adamant about remaining at home – meaning you will have some decisions to make on how to provide for the care she’ll need and what starting family caregiving looks like.
If you’re feeling a bit overwhelmed with what to expect next, these tips can certainly help.
- Learn as much as you’re able in regards to the disease. The older adult’s physician can provide you with resources and educational materials to help you know what to anticipate and also to increase confidence in your family caregiving role.
- Prioritize organization. Create a folder to keep important paperwork: prescription details, test results, contact information for doctors’ offices together with the pharmacy, and any other pertinent medical information. Start a journal to help monitor any changes in condition or concerns that arise, as well as the details surrounding those changes.
- Put aside past hurts. A new diagnosis could cause old family dynamics to resurface. If unsettled issues are interfering with your ability to provide the best care, turn to the support of a professional therapist to work through them.
- Establish boundaries together. Talk to the senior about how much and what sort of assistance would be beneficial. It is normal to want to step in and take control, nevertheless, it’s vital for the senior to maintain as much independence and control as possible.
- Take proper care of yourself, too. Your personal health and wellness are incredibly important. And, the level of care you provide can be compromised if for example, your own needs are not being met. Prioritize and designate time each day for self-care by seeking out and accepting help from others.
It is vital to know about the risk for depression and caregiver burnout, and to take the appropriate steps immediately if you begin to experience red flags including:
- Increased anxiety, agitation, and irritability
- Retreating from social interactions
- Lack of interest in once-enjoyed pastimes
- Resentment
- Lack of appetite
- Issues with falling or staying asleep
- Challenges with focus and concentration
- Fatigue
Locating a dependable care partner provides time to see the doctor for a checkup to rule out any other potential health issues, to talk with a therapist to effectively work through the numerous emotions involved in caregiving, and to relax and recharge.
The caregiving team at Generations at Home is here with additional resources for family caregivers, in addition to skilled, dependable respite care services that enable for a healthier life balance. Contact us for a free in-home consultation to find out more about home care in Tarpon Springs and the surrounding areas.
